Tag Archives: Carers

Local care for local carers: Wickham Market finds a solution

More and more of the UK’s care problems are being picked up by family carers, but who cares for them? Quis custodiet ipsos custodes?

The government and the media and all the other movers and shakers may move shiftily and shake their heads despondently, but they come up with precious few answers.  I can tell them exactly how to move forward. Government and the media and all the other movers and shakers – you  just need to come and look at what’s happening in Wickham Market!

In this small Suffolk village the Wickham Market and District  Family Carers group  (a wonderful group of which I am proud to be a member) has created a trail-blazing solution to Britain’s growing care problem. In March, 13 volunteers from Wickham Market became  the first people in the country to qualify in an innovative scheme to provide local free trained respite care to local family carers!

Why? When the villages ‘s parish council saw local services struggling to meet the care needs of an ever-increasing older population, they recognised that it would be most practical to support the people who look after this population – the family carers. They also recognised that the single most important way of supporting these people was by giving them worry-free respite from their caring role. Their unique scheme ‘Local Care for Local People’ provides a pool of trained, accredited, insured – and most importantly LOCAL – volunteer carers, to respond to the present and future needs of people looking after loved ones fulltime.

After qualification, the volunteers carry on receiving  training, development and supervision. The knock-on effect is an improvement to employment opportunities for local people in our rural area . The scheme is therefore not only helping our local family carers, its contributing to the economic health of the community,” says the dynamic and diminutive Pam Bell, too modest ever to admit she is the brains behind this idea (she is). “Each volunteer has undertaken 56 hours of training by accredited trainers, 10 hours of assessed placements in residential care homes, plus course work. It a huge investment of time and effort for them to make  even before they start their volunteering role in the community. This is real commitment. From Easter 2012 we’ve been able to provide up to 100 hours per month of free support for family carers so they can take a break.  Our Volunteers are qualified, insured, CRB checked and supervised and each individual Family Carer can contact the volunteer they choose directly, no agency, no waiting, no cost!”

Family Carers are unsung heroes who, out of love, compassion, friendship, voluntarily care for another adult 24 hours a day, 7 days a week, 52 weeks a year, with little or no support or opportunity to take a break. They find it hard to do all sorts of things non-carers take for granted – to go shopping, to go for a walk, to meet a friend for a coffee – even get to the doctors or cope with an unexpected injury. The idea of doing something really positive to help them – training local people to become Local Volunteer Carers – was born from their plight says Sarah Owen Williams who is Wickham Market and District’s  Carers Support Group leader.

“Almost all support groups for carers are centred on the illness of the person they are caring for. Yet the problems that all carers face are very similar. Once we’d set up a group in Wickham Market to help any local family carer, we realised that respite was the key issue for all of them. And that we could make a real difference to their lives by training a bank of local people to provide short term respite care when emergency strikes. Or just when somebody wants a little time off from it all. Why should their love and public-spiritedness give them no private time? Pam adds.

When employed people talk about the stress of  their long working weeks, they need to remember that a full-time family carer is working a 168 hour week without pay, overtime, sick leave, holiday pay or an occupational pension. You can be called on any time of the day or night.  Indeed, I spent a terrifying and upsetting night in A&E ten days ago – unsure as to whether the relative I care for would survive the night (she did).  It may be  stressful running counties, countries or big companies  – I wonder if it is any less stressful being on call for years as the permanent link between life and death for just one single other person. You certainly don’t get paid at the same rate.

And on top of everything carers are always worrying about what will happen to their loved one if they have an accident or became seriously ill. I was knocked off my bicycle three years back by a man driving on the wrong side of the road.  He jumped out of the car to see if I was badly hurt.

And grazed and bruised I might be, but I had my priorities. I burst into tears and said If you had killed me, there’d be no-one to look after my daughter!

Nor was there. There are no carers for carers.

But now Wickham Market has made sure there are!

And if you don’t live in Wickham Market, or district? This scheme is unique – but we would be delighted to help other communities to replicate it in other parts of the country says Pam.

So  that’s all there is to it. Go thou and do likewise, why don’t you?

Family carers need recognition as workers

Although local concerns about the closure of the Suffolk Respite charity are timely, we need to recognise that the problems family carers face are not primarily those of ‘frontline cuts’. They are the outcome of years – decades – of total neglect by  past governments.  Carers need more than charity – they need recognition as workers. I speak as a 24/7 fulltime carer  since the year 2000.

6.4million unpaid family carers in the UK save the UK economy £140bn every year. And for 24/7 care (a 168 hour week), they get a Carers Allowance of £55pw only if they are unable to work on top! Most carers struggle with dreadful daily conflicts between work and care, and a million have had to give up or reduce their hours, losing an average of £11,000 a year. There’s a wolf at every carer’s door – and over 4 in 10 say caring has pushed them into the red, with 47% being made ill by money worries. Their worries come, not only from lost earnings, but  because they face bills for special equipment, foods, medicines, transport, heating.

Its a big price to pay for love. Yet carers don’t expect to be thought of as noble: we do it in many cases because  that is the hand that we and the person we love and care for have been dealt.  There are no other options, or options that do not accord with common humanity.

We cannot always manage to be the angels we are not, so it isn’t surprising that we would rather be thought of as the workers we are. Yet New Labour, Old Labour, wet and dry Tories – no government has given a monkeys for the plight of our large but clearly politically insignificant group. For all the care past governments have had for carers ,we might as well have been a rural bus route!

On Nov 30th (Strike Day)I and the person I care for crossed a picket line for an essential (life-supporting) appointment. I asked the Unison reps why they were not striking to improve the lot of family carers.   As I pointed out to them : “Our terms and conditions include no occupational pension, no time off, no holiday, no sickness pay or cover, Health & Safety training and we have no recourse to the European Time Directive”,.

“We can’t represent you because you don’t work,” I was told. “But we care an awful lot for your plight..”

Right.

I have since been onto Unison to ask whether they would consider representing 6.4million of the hardest workers in the land to improve dire living conditions that a public-sector union should be breaking its heart over. So far, no response.

This is a slightly amended version of my letter to the EADT, 6/02/2012

FACT – fire safety for the vulnerable

I went to a meeting of the Wickham Market and District Carers’ group today, where, yet again, we were treated to the most brilliant and useful talk. This time it was from FACT (Fire and Carers Together).

Explaining FACT to all of us who are desperate to know..

The Suffolk FACT scheme is a free service in Suffolk for family carers and vulnerable people with additional needs who might find it difficult to leave their home, or understand when they should leave their home, or know how to leave their home, in the event of a fire. As you can see, it gives essential information.

How does it work? Basically, Suffolk Family Carers works in partnership with Suffolk Fire and Rescue Service to assist family carers and vulnerable people to prevent fire in their homes. Fire safety officers will  come out to your home, and provide a very specific home fire safety check on site, and then give you advice – and appropriate (free) equipment if it is needed. By registering with FACT, you  – and those you care for – will learn how to prevent fire in the home – and will be helped to prevent it.

And more – FACT can give you a (free) listing on their an emergency database at the Fire Control and Command Room . This  alerts them to people with special needs or requirements should there be a fire on the property and will help them prioritise rescue.

We in Suffolk can be proud that FACT is the first scheme of its kind in the country.

So far, FACT has registered a great many people in Suffolk, and has also provided over 800 home fire safety checks. Suffolk Fire and Rescue Service has fitted many fire alarms, including sensory alarms (ones that can alert people with hearing difficulties).

Carers: there is no charge for this service… so please, please, make the most of it!

More details and how to register on the FACT scheme, here