Speak Up for Epilepsy – end avoidable deaths

EpilepsyJust having epilepsy takes as much as ten years off your life. People with epilepsy die young or younger – and 4 out of 10 deaths are avoidable. That’s the heartbreaking thing!

Epilepsy is all around us, but because its a hidden condition you do not notice it.

Statistically, there will be about 20 students with epilepsy at Farlingaye, 110 people in Woodbridge, 1250 in Suffolk Coastal, 7,300 in Suffolk…

Everybody knows someone – and all of you know me!

I’m asking our MP Therese Coffey to support a new National Sentinel survey from the DoH to record and audit all epilepsy deaths in the UK (as epilepsy deaths for starters – you wouldn’t believe how often they aren’t even recorded!)  and act on the findings – to ensure that in the future nobody with epilepsy will die needlessly & before their time.

I’ll tell you how I get on!

UPDATE:   19-03-2016

Yesterday I met my MP, Therese Coffey and persuaded her of  the need to commission an up-to-date National Audit of Epilepsy deaths and act upon it.  Dr Coffey, currently deputy-Leader of the House of Commons, has agreed to speak to the most appropriate minister, and hopefully arrange a meeting of MPs to talk to Jeremy Hunt. I know a lot of people over the country have already contacted their MPs.

If you think this is as important as I do,  you can email your MP  in this nationwide campaign (- even if its Dr Coffey again) .It will make this VITAL audit more likely to happen!Speak Up for Epilepsy – and help save lives please!

Leave a Reply

Your email address will not be published. Required fields are marked *

This site uses Akismet to reduce spam. Learn how your comment data is processed.